Welcome to Fibrodaze!
Fibromyalgia, like many other chronic illnesses, is life-changing. Existing day after day with chronic pain, exhaustion, brain fog and a multitude of other symptoms prevents you from living the life you want. It wears you down. It affects you physically, mentally and socially. It can leave you exhausted, confused and lonely.
I’m Sue and I live in a small town in Illinois. I was diagnosed with Hepatitis C in 2000. Although Hep C treatment was successful, my health never returned. I was finally diagnosed with Fibromyalgia in 2006. In the beginning, my symptoms were mild and flare-ups didn’t last too long. But eventually, the fatigue, dizziness, migraines, and pain kept me from enjoying my life.
Every time I went to the doctor, I left with new prescriptions to fill. The more medications I took, the worse I felt. I was sooo tired all the time and the brain fog was awful. I felt confused (dazed)… I couldn’t think straight or remember things. I couldn’t handle noise. Being around a lot of activity made me feel like I wanted to jump out of my skin.
Fibro was winning and my life was falling apart.
Then in 2012, I lost my health insurance and could not afford many of my prescriptions. But guess what? I could think more clearly, the fatigue wasn’t as bad and the dizziness went away. My hot flashes and the uncontrollable sweating stopped.
That was when I knew…the prescriptions were making me feel worse, not better.
I made the decision to learn more about fibromyalgia. I created this blog to try to make sense of the senseless. To try and understand what is going on in my body. To try and take the confusion out of living with fibromyalgia and find ways to heal. To live better. To be my own health advocate and to advocate for anyone living with a chronic illness.
You see, I am sick of the stigma attached to chronic illnesses. I am sick of the people who don’t believe us. I know it is hard for family and friends to understand. How can we expect them to when we don’t understand it ourselves? But we should not be criticized and blamed for our illness. We do not deserve that, especially from the medical community.
The goal of Fibrodaze blog is to help others who have fibromyalgia live a better life. I will write about how to improve our fibromyalgia symptoms, including our emotional well-being. I would like to post at least twice a week, but because of the ups and downs of fibromyalgia, this may not always be possible. I will try my best.
I hope you will stay in touch with me. Please feel free to contact me about anything.
Please note that the information contained on this site is provided for informational purposes only and is not, nor is it ever intended to be, a substitute for professional medical advice or professional recommendations, diagnosis, or treatment. Always seek the advice of your physician(s) or other qualified healthcare provider(s).
In order to help with costs, Fibrodaze blog will also contain links to affiliate products and third-party advertising. You can read my full disclosure on the disclosure policy page.