Fibromyalgia is life-changing. It wears you down and prevents you from living the life you want. It affects you physically, mentally and socially. Leaving you exhausted, confused and lonely.
I’m Sue and I live in a small town in Illinois. I was diagnosed with Hepatitis C in 2000. Although Hep C treatment was successful, my health never returned.
I was finally diagnosed with Fibromyalgia in 2006. In the beginning, my symptoms were mild and flare-ups didn’t last too long. But eventually, the fatigue, dizziness, migraines, and pain kept me from enjoying my life.
Every time I went to the doctor, I left with new prescriptions to fill. The more medications I took, the worse I felt. I was so tired and dizzy all the time. I felt like I was walking around in a daze. I couldn’t think straight or remember things (like words).
I couldn’t handle any noise. Being around a lot of activity made me feel like I wanted to jump out of my skin. My embarrassing excessively sweating skin.
Fibro was winning and my life was falling apart.
Then in 2012, I lost my health insurance and could not afford many of my prescriptions. The first few weeks were awful. But guess what happened?
I started to feel better. I could think more clearly, the fatigue wasn’t as bad and the dizziness went away. My hot flashes and the uncontrollable sweating stopped.
That was when I knew…the prescriptions were making me feel worse, not better.
I made the decision to learn more about fibromyalgia. I read everything I could find including websites, books, and research studies. It was overwhelming to deal with so much information. I started this blog as a way to sift through and make sense of it all.
4 things I have learned
Life with fibromyalgia is all about making choices that you control. Many of the symptoms of fibromyalgia can be managed by making adjustments, taking care of yourself and listening to your body.
When you live with chronic pain it’s natural to struggle with negative thoughts and emotions. But negative self-talk makes coping with pain and illness all the more difficult. The good news is that we can stop this negative cycle and retrain our brain to think positively.
The most important thing I have learned is to appreciate the life I have. Because of FMS, I was forced to take a close look at how I was living and make changes. It has given me the opportunity to find out what is really important to me.
I want to help
The goal of Fibrodaze blog is to help others with fibromyalgia. I want to help you find ways to make your life better. Most of all, I want you to know that you are not alone.
We all struggle with bad days, symptom flare-ups, and self-defeating thoughts. But, we cannot let fibromyalgia steal our joy, our identity, and most important out worthiness.
Remember, learning to treat yourself well can make the difference between controlling your FM symptoms and letting them control you.
I hope you will stay in touch with me. Please feel free to contact me here on the blog or on social media.
Please note that the information contained on this site is provided for informational purposes only and is not, nor is it ever intended to be, a substitute for professional medical advice or professional recommendations, diagnosis, or treatment. Always seek the advice of your physician(s) or other qualified healthcare provider(s).